Optimizing Rare Disease Clinical Trials Through Patient Experience

Why Collaboration with the Rare Disease Community is Vital to Today’s Research

Improve Study Success & Patient Experience

Leverage the Power of Partnership in Your Next Trial

Clinical trials are pivotal in advancing medical research and developing treatments for rare diseases. However, an alarming 80% of trials fail to conclude on schedule, creating significant hurdles for affected patients and communities.  

With an emphasis on clinical transparency, collaboration, and data privacy, our webinar provides a unique opportunity to better understand and address the challenges inherent in rare disease clinical trials to drive innovation and improve lives. 


Watch the Webinar

Hear From

Industry Expert Panelists

Pam-Cusick-150Pam Cusick
SVP, Rare Patient Voice 
Monica-150Monica Dudley-Weldon
Founder, SYNGAP1 Foundation  
Kimberlee_Heidmann-150KimberLee Heidmann
EVP of Patient Experience and Customer Success, Scout  
Moderated by Kuno van der Post
Chief Revenue Officer, Scout 


Get Their

Rare Disease Research Insights

This discussion covers topics including: 

  • Challenges to rare disease trial success 
  • Effects on rare disease patients, families and caregivers 
  • The importance of patient experience (and how to enhance it) 
  • Partnering with rare disease communities and advocacy groups